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I am Nikki's mom, Jan. A couple of days before this story was printed Nicole received word that her surgery was denied by United Healthcare due to "LACK OF MEDICAL NECESSITY". This is outrageous and in my opinion criminal. It took journalistic coverage and the help of 3 Congressmen to get Nikki to Johns Hopkins for her first visit. The need for surgery was determined then, December 6th. Every passing week since then has stolen what little life Nikki has. Agreeing to diagnostics and surgery with Dr. Luciano should have been evident and deemed urgent. But medicine is a bean counting, pencil pushing game in which Nikki is a statistic. She needs an expedited YES and she needs it NOW.

From: Persistence leads to progress for Johnston woman with rare brain illness

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